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HERDIN Record #: 7024-19032116123886 Submitted: 22 March 2019 Modified: 22 March 2019

Life behind butterfly rash: the challenges and coping experiences of systematic lupus erythematosus (SLE) patients.

Jones Patrick G. Estoy


    The study aimed to discover the challenges and coping experiences of
systemic lupus erythematosus (SLE) patients. A qualitative, descriptive
phenomenological design was used on five SLE patients as key informants. In
selecting the informants for the study, purposive sampling following snowball
technique was utilized and was conducted in Metro Cebu. It utilized a semi
structured in-depth interview in data gathering from the key informants. The
collected data were subjected to Colaizzi's method of analysis. Out of the data
gathered, common themes were formulated such as: Strained Self-worth,
Physical Impediment, and Enduring Challenges. Strained Self-Worth was
described as lowered self-value as the key informants reported concerns on
physical appearance and self-pity. Likewise, SLE was viewed as a Physical
Impediment since it caused fatigue and inconvenience which resulted to changes
in lifestyle. Furthermore, Enduring Challenges revealed the activities done to
cope with the life changes brought by SLE such as concealing physical
manifestations, avoiding sun exposure, searching for facts about the illness, and
relying on faith. Thus, recommendations included promoting sensitivity in caring
for these patients, conducting health education to impart knowledge about the
disease, and assisting patients in their life changes.

Publication Type
Thesis Degree
Medical-Surgical Nursing
Publication Date
March 2014
LocationLocation CodeAvailable FormatAvailability
Cebu Normal University T E819 2014 Abstract Print Format