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Submitted: 06 March 2018 Modified: 04 September 2019
HERDIN Record #: PCHRD18030608163347

Parent-child communication about congenital adrenal hyperplasia: Filipino mothers' experience.

Peter James B. Abad,
Mercy Y. Laurino,
Sandra  Daack-Hirsch ,
Lorna R. Abad,
Carmencita D. Padilla

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BACKGROUND: Family communication facilitates coping a genetic condition by ensuring accurate understanding of the illness,its inheritance pattern,associated recurrence risk and risk perception.


OBJECTIVE: This paper explores Filipino mothers' experience in communicating information about congenital adrenal hyperplasia (CAH) to their children.


METHODS:Descriptive qualitative design was used.families affected with CAH were recruited  via a CAH support group.Semi-structure interview with mothers were done on the following topics:content and understanding information  communicated,reasons for communicating,and changes and adjustments in the family.Thematic analysis was used to analyze the data.


RESULTS:Five families consisting 11 individuals ,including four mothers,were interviewed.finding revealed that while mother are open to communicate with their child about CAH,this is often triggered by question from the child.Mother find it challenging to discuss about the condition  and when they do discuss,this is most often done to facilitate better understanding among the siblings.There is an attempt to explain inheritance of CAH but this is also limited to the mother's understanding.


CONCLUSION:The findings of the study provide guidance to health professional on how they can support parents,particularly mothers,in discussing CAH with their children.

Publication Type
Journal
Publication Sub Type
Journal Article, Original
Title
Acta Medica Philippina
Frequency
Quarterly
Publication Date
July-September 2017
Volume
51
Issue
3
Page(s)
175-180
LocationLocation CodeAvailable FormatAvailability
Philippine Council for Health Research and Development Library Box no.117 Fulltext Print Format (Request Document)
Acta Medica Philippina Fulltext External Link (View)
Philippine Council for Health Research and Development Fulltext pdf (Request Document)
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